Photo taken
of the Sand Ceremony at the
New England Organ & Tissue Bank Gathering April
3rd to commemorate the heroes of donations.
|
Sunday was a day of bittersweet memories,
sadness, tears and a heart filled with joy as I attended the New England Organ
Bank’s Gathering to commemorate and remember the gifts of life donated at the
most sad time of all—the death of a loved one. I did not know what to expect
and knew that I wanted to be present when Matty’s name was mentioned, his photo
appeared on screen. A connection, a tie that binds, spoken out loud—his name.
The hour and a half drive to West Lebanon brought back so many memories. Memories of the sad times I drove my Dad to Dartmouth Hitchcock Hospital for
cancer treatments and visits while in recovery. Listening to the breath leave
his body—his body that had lived through extensive experimentation with the hope of helping others. Happy memories of Mom’s new
life, started many years later as she married her very first boyfriend and settled
in this town—her new home, a new town after 50 plus years. Memory of a panicked 6 year old Jason as he watched the
news and rushed to find me “Mom, Mom quick we’ve got to get to Mams, I just
heard they’re bombing Lebanon”. No more news for J-Bird for a very long time.
We made a visit that day to assuage his fears. What a heart! The heart, one of
many organs than can be donated upon death. I learned of the beauty of one
heart beating in another. The gift of life.
I remembered the confusion of that
fateful day when Nikki received a phone call from the Donor Bank. Donation was
the last thing on our minds as we were trying desperately to deal with the life
changing trauma we had been dealt. Life changing. Death can bring a second
chance to someone who has experienced a medical trauma. Life changing. One
term, one phrase with meanings from both ends of the spectrum. At close to
11:00 pm that evening, Nikki in a state of gut-wrenching sorrow, gave the
needed consents over the phone and Matthew’s tissues were harvested. She
recognized the importance of Matty’s wishes and made sure they were carried
out. The other half of that equation— someone from the Organ Bank was holding
on as well. Ready to take Nikki’s call, answer questions, do whatever was
needed to take care of Matty with respect. Harvested. Odd word for the medical
removal of body parts. Harvest brings visions of farms, cooler weather, bright
moon-lit skies, bounties of food, a settling down and waiting for a change in
season. Yet, harvesting organs and tissue is a different kind of life
sustaining bounty. It gives the recipient the opportunity to experience many
future harvests in their lifetime. It allows the donor to complete that one
final act of giving through love and compassion. It allows the continuation of
the life cycle that would otherwise be interrupted by death or the degradation
of quality of life without the needed, revitalized tissue. Organ harvesting,
tissue harvesting—needs a preceding identifier.
I remembered the first discussion I had with my teenage boys regarding organ donation. We were having breakfast at a local restaurant
and I retrieved my driver’s license from my wallet. Back in the day, you simply
had to pen in and sign that you were granting consent for organ and tissue
donation. It is much easier to have a discussion about wishes while alive; taking
time to understand the importance of donating the gift of life. The physical
body, the garment we wear for our lifetime on earth serves no purpose to us
after death. It can serve a much greater purpose if we acknowledge the lives
that can be saved and made better through something you no longer have a need
for. The boys pulled their licenses and filled in the backs. Times have changed
and the State of NH now inquires at time of license application or renewal what
your wishes are regarding organ and tissue donation. There is a
special form that can be filled if you would like to change your status. No
need to wait until “next time” if you have not yet made the decision. Please
visit State of NH Division of Motor Vechicles
and take action that will be appreciated by many donor recipients and their
family members.
I listened to stories of recipients, captured their
gratefulness and appreciation for a gift that cannot be defined by words yet
eloquently described heart to heart. I heard from doctors who parlayed
statistics, identifying the reality for the need of donations and the end
result for those who cannot wait. I learned about the priority assigned to
those on the “List”. Waiting is excruciating and uncertainty fills the soul as
death for many is knocking at their door.
A Sand Ceremony commemorating all the heroes—the
donors, was another highlight of the afternoon. A votive filled with colored
sand is handed out to donor families. Every votive is emptied into a tall glass
jar; layer upon layer signifying the unity, the joining, the intertwining that
occurs between donor and recipient with organ and tissue transplants. The
ceremony reminded me of the comfort I’d not thought of in a very long time as
grief has pushed it into the background of my memories. Waiting for the weather
to change to Spring and holding Matthew’s ashes for release, the waiting and holding are bringing
forth many moments of disbelief. How can it be, such life, such love? No need to
revisit the darkness, however remembering the gifts that Matty gave in a final
act of love and compassion reminds me that his physicality lives on in others. Tremendous
comfort can be derived from knowing that his corneas have opened the window of
sight to someone in need. Will they be able to see the world through Matty’s
eyes for a bit until their own tissue welcomes the gift? I want to tell the
recipient that Paris was seen, the beauty of the mountains and lakes of Tahoe
forever etched in memory. His sight absorbed the radiant smile from a woman that loved him
deeply and the adoration of his tiny tots. The joy in creating, partaking and
enjoying the ripple effect of laughter was Matthew’s specialty, seen through
his beautiful eyes. His eyes saw hard work and the reward of a job well done. His
eyes witnessed the strong bonds that tie when family and friends love from a
place of honesty, loyalty, caring and kindness. They saw pain incurred when the
last breath of a beloved little brother was taken and the blood and terror
resulting from the Boston Marathon attacks. The beauty and the pain enlarged
his heart with love and compassion. My hope is that you, the recipient, see
life through Matty’s eyes—even if for just a brief moment in time.
I’ve read that up to 50 people can be helped
through tissue donation. Perhaps a Grandmother has the agility and flexibility
to now play with her grandchildren. Hiking and the outdoors may be enjoyed by
others. A burn victim may have an extra chance at healing. Matty’s veins may
carry much needed blood, necessary in this journey called life.
What I really would like the recipient to hear
is that your story is important to me. Your health struggles are felt deeply in
my heart and the joy of another chance is shared by both of us. I realize that
anonymity plays a very big role in transplantation. I would like to say to you,
in a letter or a conversation. “You are the person that keeps that one bit of
the physical that remains of my son. It helps so much to know that a part of
him lives on when my moments of disbelief surface, when the awareness comes
crashing down—my beautiful son, filled with a lifeforce like no other is no
longer with me on this physical plane. You are the gift that allows me to
search my memory bank and retrieve the warm thoughts of comfort Matthew’s final
act on this earth made possible. You, recipient, fill my heart with comfort. You,
recipient, in accepting Matthew’s tissue create an atmosphere of uplift when I
need it most. I want to tell you his name. I want to hear you speak it, write it. I want to wish you well. I want to ask you to carry my boy with love and if
you feel a bit of recklessness, new found thoughts of risk taking rising, don’t
let it frighten you. It’s Matthew’s way of living life to the fullest and he’s
sharing that with you. Let go. Enjoy. Love. Laugh. Most importantly LIVE. Live
with every cell of your body—you are doing it for two now”.
If you have not done so, please visit or
revisit your thoughts on organ and tissue donation. It is truly the gift of
life, the gift of a better life. For more information in New England (or
referrals to other donor banks) please contact:
New
England Organ Bank
60 First Avenue
60 First Avenue
Waltham, MA 02451
800.446.6362
www.neob.org
To learn more, visit: Organdonor.gov
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